Supporting Families with Congenital Heart Disease
Guiding you through the journey with compassion, knowledge, and care.
At Keystone Hearts of Pennsylvania, we understand the emotional and medical challenges families face when a loved one is diagnosed with congenital heart disease. Our mission is to bring hope, strength, and support to families impacted by congenital heart defects.
Through trusted resources, meaningful community connections, and dedicated advocacy, we empower families to navigate their journey with confidence and compassion. Whether you're seeking guidance, connection, or simply a place to feel understood, we’re here for you—every step of the way.
Together, we’re building a future where every heart beats stronger, brighter, and full of possibility.
Navigating Medical Processes Together
Guiding you every step of the way
Navigating the world of congenital heart disease can feel overwhelming—especially when it’s your child. We’re here to make it easier. Our compassionate team breaks down complex medical information, clearly explains your options, and supports you through every phase of your journey. We empower families with the knowledge and confidence they need to make informed, thoughtful decisions about their child’s care..
Our impact
60%
of children with a heart condition have special healthcare needs.
25%
of children born with CHD will require heart surgery or other interventions within their first year to survive.
100%
of families impacted by CHD can benefit from a community of care and support.
This is why we’re here — to ensure that no family faces the journey of congenital heart disease alone. Together, we create a network of care, hope, and strength for those who need it most.
You're Not Alone on This Journey
At Keystone Hearts of Pennsylvania (KHOP), we know firsthand the emotional and medical challenges that come with navigating congenital heart disease (CHD). Our mission is simple yet powerful: to offer compassionate, expert, and hands-on support so no family ever feels alone in this journey.
Founded by parents who have walked this path themselves, KHOP serves as a lifeline—offering clear guidance through complex medical decisions, heartfelt emotional support, and a strong, understanding community. Whether it’s through care packages, help navigating treatment, or one-on-one peer connections, we’re here with you, every step of the way.
Care Packages for Heart Warriors
Our care packages are designed to bring comfort and reassurance to families and patients dealing with congenital heart disease. These packages contain helpful resources, thoughtful gifts, and essentials to make medical stays more bearable. We want every patient to feel supported, valued, and cared for throughout their treatment.
How We Can Help
Care Packages
Our care packages are thoughtfully designed to provide comfort and support to families facing congenital heart disease. Each package includes helpful resources, stress-relief items, self-care essentials, and small gifts to offer comfort during hospital stays and treatments. These packages aim to reduce stress, provide reassurance, and remind families that they’re not alone in their journey.
Medical Navigation Support
The world of congenital heart disease can feel like a maze—filled with unfamiliar terms, tough decisions, and endless appointments. Our Medical Navigation Support is here to guide you through it all. We help families understand treatment options, communicate effectively with healthcare providers, and stay on top of appointments and procedures. With KHOP by your side, you'll have the clarity, confidence, and support you need to make informed choices and move forward with peace of mind.
Educational Resources & Community Events
Our educational resources and community events provide families with the knowledge to navigate congenital heart disease, from treatment options to patient advocacy. What sets us apart is that every team member has been personally impacted by CHD, so we truly understand the challenges. We’re dedicated to sharing our expertise, offering support, and creating a community where families can connect, share, and learn together.
Compassionate Care for Every Step of the CHD Journey
At KHOP, our mission is to support families navigating the complexities of congenital heart disease. We are dedicated to providing essential resources, emotional support, and a compassionate community to ensure that no one faces this journey alone. Through care packages, medical navigation, educational resources, and community events, we empower families with the knowledge, tools, and connections they need to thrive. With firsthand experience of the challenges CHD brings, our team is committed to walking alongside every family, offering hope, guidance, and unwavering support.
Stay connected with KHOP and be part of our community!
Receive the latest updates on upcoming events, new resources, and valuable insights to help you navigate this journey.